Inherited cancer registries

Summary

Cancer is often diagnosed at a late stage when treatment options are limited, and prognosis (likely course of the condition and its outcome) is worse. Up to 12% of cancers diagnosed are linked to an inherited gene change. Registries (information systems that collect, store and manage data) have been developed for the identification, tracking and surveillance of people at risk of inherited cancers.

 Health Technology Wales researchers searched for evidence on the clinical and cost-effectiveness of registries for the identification, tracking and surveillance of people at risk of inherited cancers.

Based on the evidence identified, HTW’s Assessment Group concluded not to progress this topic to evidence appraisal.